A partnership between the Universities of Brighton and Sussex with the NHS

 

oncology and genetics

Name: Sue Eckstein

Academic position: Lecturer in Clinical and Biomedical Ethics

Contact details:

Medical Teaching Building 2.16
University of Sussex
Falmer
Brighton BN1 9PH
UK

Tel: +44 (0)1273 877017
Fax: +44 (0)1273 877884

E-mail:

Biography:

• 2004 – 2007    Director of Programme Development, Centre of Medical Law and Ethics, King’s College London
• 2002 – 2004    Research Fellow, Centre of Medical Law and Ethics, King’s College London
• 1999 – 2002    Research Associate, Centre of Medical Law and Ethics, King’s College London
• 1991 - 1999     Programme Manager, The Overseas Training Programme, Voluntary Service Overseas
• 1988 - 1991     Programme Director, The Gambia, VSOBA
• English Literature, Durham University
• MA Creative Writing, Arts and Education, University of Sussex

 

Teaching focus:

Ethics

Research focus:

Research ethics, medical ethics in the developing world, medical humanities

Current research:

PhD research in autobiographical fiction - the contractual understanding of the relationship between the author, reader and those written about, the “ownership” of memory and the tension between “truth” and “fiction”.

Key/recent publications:

Eckstein, Sue, ‘Research Ethics Committees’ in Good Clinical, Laboratory and Manufacturing Processes, ed. Philip Carson, Royal Society of Chemistry, 2007

Farsides, Bobbie and Eckstein, Sue, ‘The Tuesday Group – a project in the art of dying’ in Creative Engagement in Palliative Care:  new perspectives on user involvement ed. Lucinda Jarrett, Radcliffe Publishing Ltd, 2007

Farsides, Bobbie & Eckstein, Sue, ‘A Hospice Play’ in Dying Bereavement and the Healing Arts, ed. Gillie Bolton, Jessica Kingsley Publishers, September 2007 

Siske S. Struik, Caroline A. Maxwell, Mwele Malecela-Lazaro, Sue Eckstein, John Porter, Eleanor M. Riley, Integrating HIV testing into immunological studies of non-HIV-related diseases,, Nature Immunology, Volume 6, No 5, May 2005

Eckstein, S, The Tuesday Group, Progress in Palliative Care, Vol 12, no 6, pp313-318

Eckstein, S., & Farsides, B., The Making of the Tuesday Group, Dispatches, Vol.11, No. 2, August 2004

Eckstein, Sue, Efforts to build capacity in research ethics: an overview, Science and Development Network, June 2004

Eckstein, Sue, ‘Another Voice’, Times Educational Supplement, 8 August 2003

Eckstein, Sue, The Tuesday Group – a play inspired by the work of St Christopher’s
Hospice. Performed as part of the Art of Dying programme, February 2003

Eckstein, Sue (ed.), The Manual for Research Ethics Committees, CUP, 2003

Eckstein, Sue, ‘Research involving Vulnerable Participants – some ethical issues’, in
The Manual for Research Ethics Committees, Sue Eckstein (ed.) CUP, 2003

Eckstein, Sue, Ethical Issues In Research On Humans, Issues in Medical Ethics, April 2001

 

Training and Consultancies

1999 – 2007 Centre of Medical Law and Ethics          
Training on the ethics of research on humans to members of ethics committees, researchers and practitioners.

March 2004 Mauritius Research Council
Workshop on Research Ethics (Facilitating Ethical Research Through The Provision Of Culturally Sensitive Information; International Research Ethics Training; Ethical Guidelines For Research Involving Human Subjects.)

October 2003  International Union Against Tuberculosis and Lung Diseases, Institut Pasteur, Paris
(Facilitating Consent Through the Provision of Culturally Sensitive Information)

July 2000 Ethical Issues in International Health Research, (Kennedy School of Government), KwaZulu Natal, South Africa   

 

Active collaborations:

London School of Hygiene and Tropical Medicine & National Institute for Medical Research, Dar es Salaam, Tanzania - Capacity Building Grant – Support for the establishment and the strengthening of African National Ethics Committees or Institutional Review Boards

Brains for Development, Institute of Psychiatry. Provision of Training in the Ethics of Brain Banking.

 

Other information

Co-editor Clinical Ethics – RSM Press
Member of the Society of Authors
Member of Writers in Schools, New Writing South

 

Author of:

The Tuesday Group - Performed February as part of King’s College London’s Art of Dying Festival, February 2003
Kaffir Lilies - Afternoon Play, broadcast on BBC Radio 14 July 2006
Laura -  Afternoon Play, broadcast on BBC Radio 5 February 2008