Time for Dementia Covid-19 Study
Background
The COVID-19 pandemic has placed unprecedented pressure on health and social care systems worldwide as they respond to the virus. This has led to reduced availability of services and support for people with dementia and their family carers, alongside a reduction in informal support. In this study, a mixed-methods study design sought to understand the impact of restrictions on the quality of life (QoL) of people with dementia and their family carers.
Quantitative sub-study
Family carers already involved in the student educational programme, Time for Dementia were invited to take part in the study. Participants had previously completed measures of quality of life, proxy reports of social functioning and disease severity at baseline, pre-COVID 19. 248 family carers completed measures during the first national lockdown and the second national lockdown T3.
Qualitative sub-study
Additionally, qualitative interviews were undertaken with 16 participants during the first and second lockdown. The sample included a range of caring situations, and data has been analysed using thematic analysis.
Findings from this study will be available shortly.
Involved
Dr Stephanie Daley, Dr Nicolas Farina, Georgia Towson, Joanna Pooley, Yvonne Feeney, Dr Naji Tabet, Dr Laura Hughes, Nazire Akarsu, Dr Sam Robertson, Ms Lauren Wonnacott, Professor Sube Banerjee