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Brighton & Sussex Medical School

Care services

Care services

Introduction

If you have been diagnosed with motor neurone disease, you should be referred to your local Multi-Disciplinary Team (MDT) for help and support in managing your symptoms. An MDT is a group of health and social care professionals who work with people with MND. Some teams will be located under one roof, others will come together to discuss patient care in MDT meetings.

In some areas of Sussex, your care will be coordinated by a specialist practitioner for MND. This is a qualified health professional. Access to the service depends on which GP you are registered with.

You will find a list of local care services for each area below. 

Brighton and Hove

Heather Hill
MND Specialist Practitioner
Sussex Community NHS Foundation Trust
D3, Dyke Building
Brighton General Hospital
Elm Grove
Brighton BN2 3EW
Tel: 01273 265 984 or 01273 696011 Ext 4095 (same phone line)
Mobile: 07826 950529
Email: heather.hill1@nhs.net
Working days Monday, Wednesday and Thursday 8am-4pm.

Horsham, Crawley and Mid Sussex

Hennie Sleeman
MND Specialist Practitioner
Crawley, Mid Sussex & Horsham
Tel: 01403 620437
Email: sc-tr.mnd@nhs.net
Working days: Monday-Thursday

Chichester, Bognor, Selsey, Witterings, Petworth, Midhurst, Pulborough and surrounding areas

Debbie South
MND Specialist Practitioner (West)
Sussex Community NHS Foundation Trust
Community Neurological Rehabilitation Team
1st Floor Bicentennial Building
Terminus Rd, Chichester
PO19 8EZ
Tel: 01273 265969
Mobile: 07880 133 998  
Email: debora.south1@nhs.net OR sc-tr.cnrtwest@nhs.net

Eastbourne, Hailsham and Seaford

Vicky Lester 
MND Co-ordinator

01323 466565 Option 2
eshtmndco-ordinators@nhs.net
Joint community rehab team
Firwood House
Brassey Avenue
Eastbourne
BN22 9QJ

High Weald, Lewes and Havens

Local care services can be accessed via your GP.

Hastings and Rother 

Katherine Smith 
MND Co-ordinator

01424 726750 
eshtmndco-ordinators@nhs.net 
Bexhill Hospital
Joint Community Rehab Team
Hollier's Hill, Bexhill-on-Sea TN40 2DZ

You may also be referred to your local Hospice or Palliative Care Service for further support in managing the symptoms of MND and help with planning your future care. Some Hospices also offer day care and/or inpatient care.

Brighton and Hove: Martlets hospice
www.themartlets.org.uk

Worthing and surrounding areas: St Barnabas House
www.stbarnabas-hospice.org.uk

Crawley and Horsham: St Catherine’s Hospice  
www.stch.org.uk

Mid Sussex: St Peter and St James Hospice & Continuing care centre www.stpeter-stjames.org.uk

Chichester, Emsworth, Arundel and south of the Downs to the coast: St Wilfrid's Hospice 
www.stwh.co.uk

Hastings and Rother: St Michael’s hospice
www.stmichaelshospice.com

Eastbourne, Pevensey, Seaford, Heathfield, Uckfield; St Wilfrid’s Hospice www.stwhospice.org

Northern East Sussex Hospice in the Weald
www.hospiceintheweald.org.uk

Midhurst: Midhurst Macmillan Specialist Care Service www.sussexcommunity.nhs.uk/services/servicedetails

You can find your local hospice by using the Hospice UK postcode search www.hospiceuk.org/about-hospice-care/find-a-hospice