March 2018, Nutrition workshop
In March 2018 we hosted a Nutrition workshop for 40 health and social care professionals from across Sussex. Health professionals from several local NHS trusts collaborated to deliver this session which covered how to assess and manage the eating, drinking and nutritional effects of MND.
May 2018, Advanced masterclass
On 18 May 2018, we held an advanced masterclass on the identification, assessment & management of cognitive change in MND. We welcomed Professor Sharon Abrahams from the University of Edinburgh who summarised the research demonstrating incidence and symptoms of cognitive change in MND. The 30 attendees also learned how to use the Edinburgh Cognitive and Behavioural ALS Screen (ECAS), which was devised by Prof Abrahams and colleagues. You can learn more about the ECAS, including how to administer it here >
October 2017, South East MND Network conference
The Sussex MND Care and Research Network co-chaired the annual South East MND Network conference in Maidstone on 31 October 2017 along with colleagues from the MND Association and King's MND Care centre.
April 2017, Network launch event
We held a Network launch event on Wednesday 5 April at the American Express Community Stadium in Brighton. This was for all stakeholders; people affected by MND, health and social care professionals, NHS commissioners, MND Association volunteers and branch members.
There were 75 people in attendance, from all parts of Sussex. There was a broad mix of health and social care professionals, people affected by MND and staff and volunteers from the MND Association. There was representation from acute and community NHS trusts, hospices, local authority social care providers, universities and clinical commissioning groups.
The main aim of the day was to tell our stakeholders what the Network is and to discuss what we can achieve together. There was certainly plenty of really useful discussion.
Overall it was a very positive and inspiring day which has given us plenty of ideas to work on in the next year. We are already planning next years’ event, so watch this space!
View photos from the launch event below.