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Brighton & Sussex Medical School

Papers

Papers

This page provides links to our publications and papers of interest.

BACKGROUND IMAGE FOR PANEL

Publications

Using data to improve the health of coastal communities: The Coda Network – view it here >

Local adaptation and validation of a transdiagnostic risk calculator for first episode psychosis using mental health patient records – view it here >

“I don’t see a reason why we should be hidden from view”: Views of a convenience sample of people living with HIV on sharing HIV status data in routinely collected health and care databases in England – view it here >

What is the patient re-identification risk from using de-identified clinical free text data for health research? – view it here >

The effect of comorbidities on diagnostic interval for lung cancer in England: a cohort study using electronic health record data – view it here >

Understanding how to build a social licence for using novel linked datasets for planning and research in Kent, Surrey and Sussex: results of deliberative focus – view it here >

Ethical issues when using digital biomarkers and artificial intelligence for the early detection of dementia –  view it here > 

Challenges Encountered and Lessons Learned when Using a Novel Anonymised Linked Dataset of Health and Social Care Records for Public Health Intelligence: The Sussex Integrated Dataset – view it here >

BACKGROUND IMAGE FOR PANEL

Papers of interest

A novel protocol for a "Citizen Panel" for diverse Public and Participant Involvement in the review and development of the process to access data in the UK Longitudinal Linkage Collaboration Trusted Research Environment – view it here >

Considerations for selecting and implementing comorbidity indices when using secondary data sources: a guide for health researchers – view it here >

Promising algorithms to perilous applications: a systematic review of risk stratification tools for predicting healthcare utilisation – view it here >

Targeted validation: validating clinical prediction models in their intended population and setting – view it here >

The human role to guarantee an ethical AI in healthcare: a five-facts approach – view it here > 

The value of standards for health datasets in artificial intelligence-based applications – view it here >

Five critical quality criteria for artificial intelligence-based prediction models – view it here >

Mapping and evaluating national data flows: transparency, privacy, and guiding infrastructural transformation – view it here > 

Concept libraries for automatic electronic health record based phenotyping – view it here >

Characterizing and Managing Missing Structured Data in Electronic Health Records: Data Analysis – view it here >

Informative missingness in electronic health record systems: the curse of knowing – view it here > 

Strategies for handling missing data in electronic health record derived data – view it here >

Accounting for missing data in statistical analyses: multiple imputation is not always the answer – view it here >

Sick patients have more data: the non-random completeness of electronic health records – view it here >

There is no such thing as a validated prediction model – view it here > 

Rethink reporting of evaluation results in AI – view it here >

Learning from data with structured missingness – view it here > 

Secondary use of routinely collected administrative health data for epidemiologic research: Answering research questions using data collected for a different purpose – view it here >