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Downs 6
Brighton & Sussex Medical School

Care services

Care services

Introduction

If you have been diagnosed with motor neurone disease, you should be referred to your local Multi-Disciplinary Team (MDT) for help and support in managing your symptoms. An MDT is a group of health and social care professionals who work with people with MND. Some teams will be located under one roof, others will come together to discuss patient care in MDT meetings.

In some areas of Sussex, your care will be coordinated by a specialist practitioner for MND. This is a qualified health professional. Access to the service depends on which GP you are registered with.

You will find a list of local care services for each area below. 

Brighton and Hove

Heather Hill
MND Specialist Practitioner
Sussex Community NHS Foundation Trust
D3, Dyke Building
Brighton General Hospital
Elm Grove
Brighton BN2 3EW
Tel: 01273 265 984 or 01273 696011 Ext 4095 (same phone line)
Mobile: 07826 950529
Fax: 01273 682 685
Email: heather.hill1@nhs.net
Working days Tuesday, Wednesday and Thursday between 8am and 4pm.

Horsham, Crawley and Mid Sussex

Clare Davis
MND Specialist Practitioner
Sussex Community NHS Foundation Trust
Rose Wing
Horsham Hospital
Hurst Rd,
Horsham RH12 2DR
Tel: 01403 227000 ext 7347
Mobile: 07920284841
clare.davis3@nhs.net

Chichester, Bognor, Selsey, Witterings, Petworth, Midhurst, Pulborough and surrounding areas

Flora McMullon
Clinical Nurse Specialist - Motor Neurone Disease
Sussex Community NHS Foundation Trust
Bicentennial Building
Southern Gate
Chichester
West Sussex PO19 8EZ
Mobile: 07880 133998
Office: 01273 265969 and ask for CNRT
Email: flora.mcmullon@nhs.net
Working days: Monday, Tuesday, Wednesday 9-2pm, Thurs 9-5pm

Eastbourne, Hailsham and Seaford

Contact Dr Luci Cook via St Wilfrid’s Hospice Nurse helpline tel 01323 434222.

High Weald, Lewes and Havens

Information coming soon.

Hastings and Rother 

Information coming soon.

You may also be referred to your local Hospice or Palliative Care Service for further support in managing the symptoms of MND and help with planning your future care. Some Hospices also offer day care and/or inpatient care.

Brighton and Hove: Martlets hospice
www.themartlets.org.uk

Worthing and surrounding areas: St Barnabas House
www.stbarnabas-hospice.org.uk

Crawley and Horsham: St Catherine’s Hospice  
www.stch.org.uk

Mid Sussex: St Peter and St James Hospice & Continuing care centre www.stpeter-stjames.org.uk

Chichester, Emsworth, Arundel and south of the Downs to the coast: St Wilfrid's Hospice 
www.stwh.co.uk

Hastings and Rother: St Michael’s hospice
www.stmichaelshospice.com

Eastbourne, Pevensey, Seaford, Heathfield, Uckfield; St Wilfrid’s Hospice www.stwhospice.org

Northern East Sussex Hospice in the Weald
www.hospiceintheweald.org.uk

Midhurst: Midhurst Macmillan Specialist Care Service www.sussexcommunity.nhs.uk/services/servicedetails

You can find your local hospice by using the Hospice UK postcode search www.hospiceuk.org/about-hospice-care/find-a-hospice