DEMQOL is a patient reported outcome measure (PROM) which is designed to enable the assessment health-related quality of life of people with dementia.
It was developed according to best quality psychometric principles by a multidisciplinary team including BSMS, KCL, the London School of Hygiene and Tropical Medicine, the London School of Economics and Nottingham and Sheffield Universities. DEMQOL is designed to work across dementia subtypes and care arrangements and can be used at all stages of dementia.
The measure consists of two questionnaires.
- DEMQOL is a 28 item interviewer-administered questionnaire answered by the person with dementia.
- DEMQOL-Proxy is a 31 item interviewer-administered questionnaire answered by a caregiver.
In the majority of studies, DEMQOL and DEMQOL-Proxy are used together.
We discovered that between 2008 and 2011 there was a numbering error in the DEMQOL-Proxy questionnaire available from the KCL website. This has now been corrected, but if you have used a copy of the DEMQOL-Proxy questionnaire obtained during this time, please contact Prof Sube Banerjee, firstname.lastname@example.org, as you may need to make an adjustment to the question numbers before scoring the data.